Democratisation Accelerates Discovery
True patient-centricity remains an aspiration. We agree that patients still get a raw deal. And we know that despite some effort, the disconnect between how health systems and Pharma view ‘centricity’ versus those living with chronic health remains wide. Patient advocacy groups are under-utilised. Telehealth is being pushed as a catch-all model, and in the wrong context.
Patients have always been ahead of the curve. Many know the value of their data and are comfortable sharing, in what they feel is the right context. Savvy health tech companies – such as HealthUnlocked (Corrona), PatientsLikeMe, and PatientsKnowBest – have successfully harnessed the power of the direct collaboration model, also proving that patients are open to consenting access to Pharma and HCPs to secure anonymised data, for a fee.
Citizen science goes way beyond this.
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